Miah's Journal 4

Miah's Home Page About EHK and other rare skin disease What's New Page Miah's journal Miah's Journal Pg2 Miah's Journal Pg3 Miah's Journal 4 Miah's Guestbook Realblog GeneDX Results Miah's Photos over the years My Photos 2012 pics of skin more 2012 pics What's New

Janurary 12, 2007

.Miah is doing great!  Her doctor recently advised us that she does not need to go back to her for year.  Her skin is still scaly and it is still hard to keep moisturized.  Miah is handeling it well now that she is getting old enough to understand a little better.  She is going to be done with preschool soon and getting ready for kindergarden.

July 2008

Miah's skin is covering alot of her body now.  She is going into 1st grade and lovin life.  She was put on Acutane for her EHK but since her liver enzmes are up she is off the meds again.  Trying all sorts of stuff to see what works.